Jordan’s Story

Jordan’s story of strength and hope: In 2006, during my 2nd year of college I was diagnosed with epilepsy. It started out as absence seizures, daydreams. Once I knew what was going on it all made sense. How all those years prior in classes I’d miss out on key info. Likely the cause of the…

posted on January 26, 2020
Cavernous Malformation ● Stories of Bravery
read more

Heather Gross

Here’s Heather’s Inspiring Story: When I was a 22-year-old college student, I had a random brain hemorrhage caused by a Cavernous Angioma on my right Thalamus. There was no known treatment and the only cure was brain surgery but my lesion was too deep in my brain to reach safely so the doctors told me…

posted on June 16, 2019
Cavernous Malformation ● Stories of Bravery
read more

Tamela

I am Tamela Wagner, also known as Tamela Blessed Art. A creator of hope and happiness! My life changed in the blink of an eye when I was diagnosed in 2011 at age 44 with a rare brain disease called Cavernous Angioma. In 2012 I had brainstem surgery that many surgeons told me would be…

posted on April 19, 2019
Cavernous Malformation ● Stories of Bravery
read more

Erin

My name is Erin and I am a cavernous malformation survivor. In 2013 [during] my senior year of college…I drove seven hours home for spring break. That Monday, not even 3 days home, I got very sick… All of a sudden it felt like spiders were on my back and [my parents] called 911. [In the…

posted on April 19, 2019
Cavernous Malformation ● Stories of Bravery
read more