To date, the Be Brave for Life Foundation has raised $850,000 to improve the quality of life for those affected by cerebral cavernous malformations (CCM) and non-cancerous brain tumors by raising awareness and funding innovative research. Together, we will make a difference for patients and families!
Join the fight! Take action today.
As you raise funds to create awareness around and support research for cavernous malformations and non-cancerous brain tumors, you will discover the power that comes from being brave!
Surgery. The only cure for Cerebral Cavernous Malformation (CCM).
While four decades of research into CCM has resulted in a greater understanding of the growth of these lesions, treatment options remain limited. Today, they CANNOT be directly treated with medicine. Without surgery, symptoms can only be managed or monitored. The risks of surgery are high. It can cause permanent neurological deficits, especially in the brainstem, and there is still a high chance of recurrence.
(Photo: 1st Annual Apple Jack Kickball Tourney 2019)
Our Sponsors
We're incredibly grateful to all of our supporters!
(and to Baxter - who hiked 50 mountains this summer in support.)
Recent Blog Posts
Read about how we're working to fund research for a cure!
Jenniffer’s Story
My name is Jenniffer and I have been recently been diagnosed with CCM disease, I have had seizures since I was 14 years old. My first brain bleed was found about 2007, then in 2011 I had my first brain surgery to remove a cavernous angioma. Fast track to now, I was finally diagnosed with…
Lola’s Story
My story, is actually my Granddaughters story! At the very young age of 3 months, I realized she was having seizures. My daughter, who has epilepsy, is the reason I recognized the seizures. I called my daughter and brought the baby to the ER. There we demanded that they do a CT on my Grandaughter. The…
Amy’s Story
Growing up I remember instances of severe head pain as far back as elementary school that self resolved. Years later I became a Nurse and worked in the Emergency Department. I helped care for patients with migraines but somehow remained stubborn in getting my own headaches evaluated. At times I would come home from work…