To date, the Be Brave for Life Foundation has raised $650,000 to improve the quality of life for those affected by cerebral cavernous malformations (CCM) and non-cancerous brain tumors by raising awareness and funding innovative research. Together, we will make a difference for patients and families!


Riley's Story

Riley Callen founded Be Brave for Life in 2012. Here is her story.

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2020 Micro-grant Application deadline extended to June 15, 2020

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As you raise funds to create awareness around and support research for cavernous malformations and non-cancerous brain tumors, you will discover the power that comes from being brave!

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Surgery. The only cure for Cerebral Cavernous Malformation (CCM).

While four decades of research into CCM has resulted in a greater understanding of the growth of these lesions, treatment options remain limited. Today, they CANNOT be directly treated with medicine. Without surgery, symptoms can only be managed or monitored. The risks of surgery are high. It can cause permanent neurological deficits, especially in the brainstem, and there is still a high chance of recurrence.
(Photo: 1st Annual Apple Jack Kickball Tourney 2019)

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Our Sponsors

We're incredibly grateful to all of our supporters!
(and to Baxter - who hiked 50 mountains this summer in support.)

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Recent Blog Posts

Read about how we're working to fund research for a cure!

Sharon’s Story

Sharon’s inspirational story of life beyond cavernous malformations: On Friday, Dec 5th, 2014 at the age of 42, I came home from work and as I sat on the couch I noticed a funny feeling in my back. By Sunday night I was in pain like I had never felt. I could not sleep and…

January 26, 2020

Deb’s Story

Deb’s inspiring story of turning her struggles into an award-winning book: In Fall 2006, when I was 46, I was diagnosed with multiple cavernous angiomas—I’d experienced fleeting symptoms (dizziness, vertigo, loss of balance, numbness and tingling in my left arm) which only lasted a couple of days. Apparently, two of the angiomas had bled. A…

January 26, 2020

Jordan’s Story

Jordan’s story of strength and hope: In 2006, during my 2nd year of college I was diagnosed with epilepsy. It started out as absence seizures, daydreams. Once I knew what was going on it all made sense. How all those years prior in classes I’d miss out on key info. Likely the cause of the…

January 26, 2020