To date, the Be Brave for Life Foundation has raised $750,000 to improve the quality of life for those affected by cerebral cavernous malformations (CCM) and non-cancerous brain tumors by raising awareness and funding innovative research. Together, we will make a difference for patients and families!

 

Riley's Story

Riley Callen founded Be Brave for Life in 2015. Here is her story.

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2020 Micro-grant's have been awarded. Check back in 2021.

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As you raise funds to create awareness around and support research for cavernous malformations and non-cancerous brain tumors, you will discover the power that comes from being brave!

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Surgery. The only cure for Cerebral Cavernous Malformation (CCM).

While four decades of research into CCM has resulted in a greater understanding of the growth of these lesions, treatment options remain limited. Today, they CANNOT be directly treated with medicine. Without surgery, symptoms can only be managed or monitored. The risks of surgery are high. It can cause permanent neurological deficits, especially in the brainstem, and there is still a high chance of recurrence.
(Photo: 1st Annual Apple Jack Kickball Tourney 2019)

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We're incredibly grateful to all of our supporters!
(and to Baxter - who hiked 50 mountains this summer in support.)

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Recent Blog Posts

Read about how we're working to fund research for a cure!

Jensen’s Story

When I was 13, I started having severe migraines and blurry vision. After an MRI they stated I had a venous angioma, that probably wasn’t what was causing the issues. My doctor basically said there was nothing she could do. Three years later, while in class, I had blurry vision again. I did not think…

September 20, 2020

Patti’s Story

I too am a cavernous malformation survivor. I was 43 years old, on New Years Eve 2007. I started the day feeling sick and dizzy. By that afternoon I could not stand, talk, walk or visually focus on anything. I had severe headaches for several years but I attributed them to my hectic work schedule…

September 13, 2020

Katelyn’s Story

I can definitely say my life has not been the same since the evening of March 1st, 2020 when I was sitting in my college dining hall with my two best friends and I began to see flashes in my eyes and my legs went completely numb. My gut instinct knew something was wrong so…

August 23, 2020