We want to hear YOUR story! Telling your story is powerful medicine for you and for those who share similar experiences with a cavernous malformation or a vascular brain tumor. Your story is compelling, has the power to build connections, increase understanding and move others to take action!

“Tell me a fact and I’ll learn. Tell me a truth and I’ll believe. But tell me a story and it will live in my heart forever.” — North American Indian proverb

Shared Stories

“In 2013 [during] my senior year of college…I drove seven hours home for spring break. That Monday, not even 3 days home, I got very sick… All of a sudden it felt like spiders were on my back and [my parents] called 911.” — Erin Alexander

 

 

“My life changed in the blink of an eye when I was diagnosed in 2011 at age 44 with a rare brain disease called Cavernous Angioma.” — Tamela Wagner

 

 

 

Watch videos of Ryan, Riley and Zach’s Stories on YouTube

 

 


Your Story Matters

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